We all know we should be grateful that it is not something worse, god knows we are but it doesn’t help heal the hurt.
We all share the pain of putting our children to sleep and watching them wake to life in spica.
We all get caught by moments when we feel overwhelmed by what should have been. A snowflake symbolises a missed sledging trip, an easter egg stays hidden as no adventuring little legs were around to go seeking.
We all feel the bite when someone asks us what on earth happened to our child and we all clench a fist when they look at us as if it were our doing.
We all know the pinch that pulls at our purse strings when two incomes fall to one so our ‘disabled’ child is looked after.
We all know to smile and agree how well she is doing when inside you ache from the weight of the cast and the knowledge that you can’t leave her alone for a second, she needs you to play, the operation didn’t change her, the cast hasnt altered her but independence is a memory that is quickly forgotten
We all know the feeling of a heart aching when you see a friend of theirs walking and can only remember what once was and hope for what will be again.
But,
We all shared that gasp when our spica child learnt again how to crawl.
We all celebrated a smile when they carried on as if nothing were different.
We have all sighed with relief when an explosion in the nappy has not tainted the cast.
We all know that they cope far better than we could ever imagine.
We know we are parents to someone amazing.
We would all trade places with them in a heartbeat.
Beautiful beautiful. I hate DDH but I treasure the friends that DDH has given me and Erin. I treasure having you other mummy’s that understand the frustrations and the good bits too. That share and celebrate the good and rant together about the bad.
the ranting helps!!!!
Beautiful Jane. BB is a superstar. I hope the next few weeks go fast for you.xx
thanks emma x
Well said! Beautiful. 🙂
thanks michelle x
Beautiful post. This will all soon be a memory. I love her. x
aww x
Hugs xx
back at ya!
Very honest and lovely post. Hope BB is doing v well and the next few weeks fly by.
Thanks very much
Sometimes I get so wrapped up in my own world I forget things, including coming over to subscribe here. Oooops. I LOVE the new blog look, the photos are beautiful. Wow I can’t believe it is only a few weeks to go until the cast comes off. I bet it has felt like an eternity to you though. As always, you inspire me. I missed you. I am back now. Love you loads xxxx
Have missed you too! x
Lovely post. I hope the light at the end of the tunnel are big massive rays of pure sunshinef for all of you.
Thanks!
*hugs* love you XXX
mwah
So true.
I know I am late to commenting but I’ve just read this.
My dd had ddh, she had a pavlik harness for 12 weeks and then a spica cast for 6 months aged 8-14m. I think it’s the ‘what happened?’ comments which are the worst. My dd is 6 nOw and has yearly check ups, hopefully we can be discharged when she is 7.
Hi, just discovered your blog and it brought back many memories for me of when my beautiful daughter was diagnosed as having DDH and when she was in her spica. She is now nearly 5 and is doing amazingly well and we have just been told she now only needs to attend every three years 🙂 . I wished I had had access to a blog like this when my little girl was going through everything as it must be a huge support for families. I luckily made friends with another mum on the same hospital ward whose daughter was also being treated for DDH. We were a huge support for each other and still talk now with updates. 🙂 I hope your little girl is doing well and this will all be memories soon. I feel we appreciate every little step a thousand times more 🙂
I was born with dysplasia in both hips. I am 33 and have lived a very active life and still do. I see a chiropractor and pt to help me stay active. I have birth two babies naturally with out complications and hope to have more. It will get better 🙂
Thanks x